Looms For Lupus: Advocacy Efforts

Legislative Priorities

We are dedicated to advocating for policies that improve healthcare access, uphold patient rights, and advance crucial research. Our focus areas include:

Utilization Management: Addressing issues related to copay accumulator modifiers, prior authorization, step therapy, and other barriers to care.
Healthcare Access: Championing policies that enhance access to quality healthcare services for all patients.
Research Advancement: Advocating for increased research on lupus and overlapping autoimmune conditions.

Awareness and Education

We aim to raise awareness about autoimmune conditions and mental health, and empower our community through education:

Awareness Campaigns: Increasing public understanding of lupus and related conditions.
Educational Initiatives: Providing information on disease management, tools, and treatments.
Empowerment: Equipping patients, caregivers, and the community with the knowledge and skills to manage their health effectively.

Community Engagement

From providing education to supporting health care initiatives, Looms For Lupus offers a range of programs to support communities in need. Through these efforts, Looms for Lupus strives to create a more informed, supported, and empowered community.

Advocacy-Local, State & Federal Level

Looms for Lupus is actively engaged in Advocacy at the local, state and federal level.

Looms for Lupus is actively engaged in Advocacy at the local, state and federal level. Since 2016 Looms for Lupus has requested and accepted Proclamations from the City of Baldwin Park and surrounding cities in Los Angeles County. Looms for Lupus also has accepted proclamations in Sacramento at the State Level.

At a state and national level Looms for Lupus has attended Advocacy Hill Day to meet with legislators both in Washington DC and in Sacramento for Lupus Research, Fibromyalgia Research and Healthcare access, affordability, prevention and quality care.

Picture: Juana and Estela in Washington DC after Lupus Advocacy Day.

Proclamations Community Movement

Join Looms For Lupus and be part of the Proclamations Community Movement!

May is Lupus, Fibromyalgia and Mental Health Awareness Month. A great way to do raise awareness in your community for these conditions is by requesting for a proclamation from your city officials recognizing the Month of May as Lupus, Fibromyalgia or Mental Health Awareness month in your city.

A Proclamation is a ceremonial document, a public or official announcement issued by the City Council to commemorate a specific time period (day, week, or month) for the purpose of raising awareness about local efforts.

Whether you are a person living with Lupus, Fibromyalgia or Mental Health or a loved one of someone with these conditions or if you have an organization that raises awareness for these conditions, join us.

Step 1: Call - Reach out to your local city office clerk. Introduce yourself as their “constituent” this term is used to let them know you are part of their community and let them know you would like to raise awareness for “Lupus” (name condition) and would like to request for a proclamation declaring the month of May as “Lupus Awareness Month” and let them know why this is important to you. They will guide you through their specific process for your city and may ask you to provide a sample.

Step 2: Download and Email- Download the sample proclamation and send a follow up email to the local city office clerk. Make sure to add the name of your city in the areas indicating city, save and attach to the email. In the email please provide your contact information and make sure to follow up.

Step 3- Schedule – Usually the proclamations are presented during the city council meetings where we encourage you to invite others in the community to attend with you.

Step 4 Publicize- Make sure to take a picture of you accepting\holding the proclamation. Post the picture on social media make sure to tag your City, City officials thanking them. Please use the hashtags #ProclamationsCommunityMovement, #LupusAwarenessMonth #FibromyalgiaAwarenessMonth #MentalHealthAwarenessMonth