American College of Rheumatology Abstract by Juana Mata and Estela Mata
Building a Close-Knit Community: A Womans Journey with Lupus
The Society for Women’s Health Research spoke with Juana Mata, a patient advocate and co-founder of Looms for Lupus and Mata Advocacy and Support, about her journey with lupus. The following blog post captures takeaways from the conversation.
Juana's Story-Lupus and Clinical Trials- Let's Take Charge Campaign
The U.S. Department of Health and Human Services Office of Minority Health (HHS OMH) has joined forces with the U.S. Food and Drug Administration Office of Minority Health and Health Equity (FDA OMHHE) to launch the Let’s Take Charge! Campaign, an initiative to make lupus research more inclusive and diverse.
Meet Juana Mata and Estela Mata " The Mata Sisters, "Lupus Heroes"
Juana Mata and Estela Mata -
Support for Lupus Patients, their Families and Caregivers
Meet the Mata Sisters: Juana and Estela
Rubio Announces AD 48 Woman of the Year Co-founder of Looms4Lupus
Sisters Share their Story of Living with Lupus, as a Patient and Caregiver
Hard Advocacy Work Pays Off for Lupus!
World Lupus Day with Juana Mata
May 10, 2018
2018 Los Angeles Walk with us to Cure Lupus Twilight Stroll-
Looms for Lupus was amongst the 52 organizations that joined the American College of Rheumatology for a joint letter to insurance to U.S. Governors.. urging to take action to ensure patient access to Hydroxychloroquine. https://www.rheumatology.org/Portals/0/Files/State-level-HCQ-sign-on.pdf
Looms for Lupus is one of the official supporters of the Covid-19 Global Rheumatology Alliance.
Covid-19 Global Rheumatology Alliance is a worldwide registry was created with a mission to create a secure de-identified , international case reporting registry and curate and disseminate the outputs from registry.
Looms for Lupus co-founders Juana & Estela joined Tiffany Westrick-Robertson from the International Foundation for Autoimmune & Autoinflammatory Athritis (AiArthritis) for a discussion on the need to increase ethnic participation in clinical research.