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In the News
Hispanic Heritage Month 2024: Advocacy & Awareness Global Healthy Living Foundation Podcast
Celebrating Hispanic Heritage Month: Advocacy and Awareness in the Lupus Community
In this episode, we are joined by Estela Mata, President and CEO of Looms for Lupus, a non-profit dedicated to raising awareness and providing support for those living with lupus, and other chronic conditions. Estela shares her personal and family journey with lupus and the profound impact of advocacy. She highlights the importance of community, the need for increased awareness, and the power of sharing personal stories, especially within the Hispanic community. Estela’s message of hope and resilience is a reminder of the strength found in community and the critical role of advocacy in chronic illness management.
Mata Sisters collaborate w/ The Society for Women's Health Research- Living Well With Lupus Toolkit
Living Well With Lupus: A Toolkit for Women
The Toolkit, Living Well With Lupus: A Toolkit for Women was created to support women and their families in the lupus diagnosis and care journey.
Click on the link to access toolkit.
Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus
Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus
Building a Close-Knit Community: A Womans Journey with Lupus
The Society for Women’s Health Research spoke with Juana Mata, a patient advocate and co-founder of Looms for Lupus and Mata Advocacy and Support, about her journey with lupus. The following blog post captures takeaways from the conversation.
https://swhr.org/building-a-close-knit-community-one-womans-journey-with-lupus/
Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus
Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus
Building a Close-Knit Community: A Womans Journey with Lupus
The Society for Women’s Health Research spoke with Juana Mata, a patient advocate and co-founder of Looms for Lupus and Mata Advocacy and Support, about her journey with lupus. The following blog post captures takeaways from the conversation.
https://swhr.org/building-a-close-knit-community-one-womans-journey-with-lupus/
U.S. Department of (HHS OMH) & U.S. Food & Drug Administration OMHHE- Let's Take Charge Campaign
Juana's Story-Lupus and Clinical Trials- Let's Take Charge Campaign
The U.S. Department of Health and Human Services Office of Minority Health (HHS OMH) has joined forces with the U.S. Food and Drug Administration Office of Minority Health and Health Equity (FDA OMHHE) to launch the Let’s Take Charge! Campaign, an initiative to make lupus research more inclusive and diverse.
American College of Rheumatology 2020
American College of Rheumatology Abstract by Juana Mata and Estela Mata
In the News
Lupus LA - "Lupus Heroes"
Lupus LA - "Meet the Mata Sisters"
Lupus LA - "Lupus Heroes"
Meet Juana Mata and Estela Mata " The Mata Sisters, "Lupus Heroes"
The Lupus Project
Lupus LA - "Meet the Mata Sisters"
Lupus LA - "Lupus Heroes"
Juana Mata and Estela Mata -
Support for Lupus Patients, their Families and Caregivers
http://www.thelupusproject.com/speakers/juana-and-estela-mata/
Lupus LA - "Meet the Mata Sisters"
Lupus LA - "Meet the Mata Sisters"
103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019
Juana Mata announced as AD 48 Woman of the Year
Juana Mata announced as AD 48 Woman of the Year
Rubio Announces AD 48 Woman of the Year Co-founder of Looms4Lupus
LRA- Sisters Share their Story
Juana Mata announced as AD 48 Woman of the Year
Sisters Share their Story of Living with Lupus, as a Patient and Caregiver
https://www.lupusresearch.org/sisters-share-story-living-lupus-patient-caretaker/
In the News cont.
Hard Advocacy Work Pays off for Lupus
Hard Advocacy Work Pays off for Lupus
Hard Advocacy Work Pays off for Lupus
Hard Advocacy Work Pays Off for Lupus!
https://www.lupusresearch.org/hard-advocacy-work-pays-off-lupus/
World Lupus Day with Juana Mata
Hard Advocacy Work Pays off for Lupus
Hard Advocacy Work Pays off for Lupus
LRA - LA Twilight Stroll
Hard Advocacy Work Pays off for Lupus
LRA - LA Twilight Stroll
2018 Los Angeles Walk with us to Cure Lupus Twilight Stroll-
News Cont.
Covid-19 Hydroxychloroquine Access
Clinical Trials- Ethnic Diversity Podcast
Covid-19 Global Rheumatoloy Alliance
Looms for Lupus was amongst the 52 organizations that joined the American College of Rheumatology for a joint letter to insurance to U.S. Governors.. urging to take action to ensure patient access to Hydroxychloroquine. https://www.rheumatology.org/Portals/0/Files/State-level-HCQ-sign-on.pdf
Covid-19 Global Rheumatoloy Alliance
Clinical Trials- Ethnic Diversity Podcast
Covid-19 Global Rheumatoloy Alliance
Looms for Lupus is one of the official supporters of the Covid-19 Global Rheumatology Alliance.
Covid-19 Global Rheumatology Alliance is a worldwide registry was created with a mission to create a secure de-identified , international case reporting registry and curate and disseminate the outputs from registry.
Clinical Trials- Ethnic Diversity Podcast
Clinical Trials- Ethnic Diversity Podcast
Clinical Trials- Ethnic Diversity Podcast
Looms for Lupus co-founders Juana & Estela joined Tiffany Westrick-Robertson from the International Foundation for Autoimmune & Autoinflammatory Athritis (AiArthritis) for a discussion on the need to increase ethnic participation in clinical research.