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Looms4Lupus

In the News

American College of Rheumatology 2020

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

Knitting a Community of Hope- Abstract by Juana Mata & Estela Mata from Looms for Lupus

American College of Rheumatology Abstract by Juana Mata and Estela Mata

 

  1. https://acrabstracts.org/abstract/knitting-a-community-of-hope-supporting-empowering-and-educating-those-living-with-lupus-and-overlapping-conditions-and-their-loved-ones-via-in-person-and-virtual-support-groups-t/

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

 Building a Close-Knit Community: A  Womans Journey with Lupus

The Society for Women’s Health Research spoke with Juana Mata, a patient advocate and co-founder of Looms for Lupus and Mata Advocacy and Support, about her journey with lupus. The following blog post captures takeaways from the conversation.   

https://swhr.org/building-a-close-knit-community-one-womans-journey-with-lupus/

U.S. Department of (HHS OMH) & U.S. Food & Drug Administration OMHHE- Let's Take Charge Campaign

Society for Women's Health Research-2022 Building a close-Knit Community:A Womans journey with Lupus

U.S. Department of (HHS OMH) & U.S. Food & Drug Administration OMHHE- Let's Take Charge Campaign

Juana's Story-Lupus and Clinical Trials- Let's Take Charge Campaign

The U.S. Department of Health and Human Services Office of Minority Health (HHS OMH) has joined forces with the U.S. Food and Drug Administration Office of Minority Health and Health Equity (FDA OMHHE) to launch the Let’s Take Charge! Campaign, an initiative to make lupus research more inclusive and diverse.


https://youtu.be/_eYM1s_4Bdo

In the News

Lupus LA - "Lupus Heroes"

Lupus LA - "Meet the Mata Sisters"

Lupus LA - "Lupus Heroes"

Meet "The Mata Sisters" Lupus  Heroes.

Meet Juana Mata and Estela Mata " The Mata Sisters, "Lupus Heroes"

https://twitter.com/lupusla/status/539916277301510146

The Lupus Project

Lupus LA - "Meet the Mata Sisters"

Lupus LA - "Lupus Heroes"

  

Juana Mata and Estela Mata -

Support for Lupus Patients, their Families and Caregivers

http://www.thelupusproject.com/speakers/juana-and-estela-mata/

Lupus LA - "Meet the Mata Sisters"

Lupus LA - "Meet the Mata Sisters"

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

  

Meet the Mata Sisters: Juana and Estela

http://lupusla.org/meet-the-mata-sisters-juana-and-estela/ 

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

https://kost1035.iheart.com/featured/the-sunday-journal/content/2019-04-05-lupus-research-alliance/#.XKmLiufUxVk.twitter

Juana Mata announced as AD 48 Woman of the Year

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

Juana Mata announced as AD 48 Woman of the Year

  

Rubio Announces AD 48 Woman of the Year Co-founder of Looms4Lupus

https://a48.asmdc.org/press-releases/20180312-rubio-announces-ad-48-woman-year-co-founder-looms4lupus

LRA- Sisters Share their Story

103.5 Karen Steel speaks to Juana and Estela on Lupus Research Alliance LA Walk 2019

Juana Mata announced as AD 48 Woman of the Year

  

Sisters Share their Story of Living with Lupus, as a Patient and Caregiver

https://www.lupusresearch.org/sisters-share-story-living-lupus-patient-caretaker/

In the News cont.

Hard Advocacy Work Pays off for Lupus

Hard Advocacy Work Pays off for Lupus

Hard Advocacy Work Pays off for Lupus

  

Hard Advocacy Work Pays Off for Lupus!

https://www.lupusresearch.org/hard-advocacy-work-pays-off-lupus/


World Lupus Day with Juana Mata

Hard Advocacy Work Pays off for Lupus

Hard Advocacy Work Pays off for Lupus

  

World Lupus Day with Juana Mata

May 10, 2018

http://lupusla.org/world-lupus-day-with-juana-mata/

LRA - LA Twilight Stroll

Hard Advocacy Work Pays off for Lupus

LRA - LA Twilight Stroll

  

2018 Los Angeles Walk with us to Cure Lupus Twilight Stroll-

http://support.lupusresearch.org/site/TR/WalkwithUs/Walk2013Redesign?team_id=98602&pg=team&fr_id=4141

News Cont.

Covid-19 Hydroxychloroquine Access

Clinical Trials- Ethnic Diversity Podcast

Covid-19 Global Rheumatoloy Alliance

Looms for Lupus was amongst the 52 organizations that joined the American College of Rheumatology for a joint letter to insurance to U.S. Governors.. urging to take action to ensure patient access to Hydroxychloroquine. https://www.rheumatology.org/Portals/0/Files/State-level-HCQ-sign-on.pdf

Covid-19 Global Rheumatoloy Alliance

Clinical Trials- Ethnic Diversity Podcast

Covid-19 Global Rheumatoloy Alliance

 Looms for Lupus is one of the official supporters of the Covid-19 Global Rheumatology Alliance.   

Covid-19 Global Rheumatology Alliance is a worldwide registry was created with a mission to create a secure de-identified , international case reporting registry and curate and disseminate the outputs from registry.

 https://www.rheum-covid.org

Clinical Trials- Ethnic Diversity Podcast

Clinical Trials- Ethnic Diversity Podcast

Clinical Trials- Ethnic Diversity Podcast

 Looms for Lupus co-founders Juana & Estela joined Tiffany Westrick-Robertson from the International Foundation for Autoimmune & Autoinflammatory Athritis (AiArthritis) for a discussion on the need to increase ethnic participation in clinical research.    

https://www.aiarthritis.org/podcast-ep24?fbclid=IwAR0LtnuWNuC3oXR8RjVufwQfL3K7uNFbwUu1DSRS4a8COqVcweYHsozegpU

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