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  • About Us
  • Lupus
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Looms4Lupus

Virtual Live Symposium for International Self Care Day

   

Looms for Lupus is hosting a Live Symposium in honor of International Self-Care Day!

Monday July, 24, 2023 at 5:00pm PST

Join us for a live discussion and empowering session on health coaching and the value it can add to your toolkit to becoming the best selfcare and healthcare advocate for your overall care with our special guest Lauren Freedman, Healthcoach, Host & Creator of Uninvisible Pod , & Patient Advocate along with Healthcare advocates Juana Mata  and Estela Mata 

No registration is needed simply tune in to @Looms4Lupus, Facebook Live, Twitter or YouTube channels.
#Selfcare #Looms4Lupus #patientadvocate #toolkit

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3rd Annual Wellness Day

    

A Day that will iLOOMinate, Inspire & Empower you on your physical & mental wellness journey. 

 The Wellness Day is a celebration of May Awareness for Lupus, Fibromyalgia and Mental Health. We will have Empowerment, Health Education and Wellness breakout sessions for patients, caregivers and loved ones that will teach skills needed to actively participate in healthy coping strategies. These sessions will be engaging and interactive in English and Spanish.  

More information and registration coming soon!


FREE EVENT!

Register

    

  Un día que iLOOMinará, inspirará y empoderará en su jornada de bienestar físico y mental. 

 El Día del Bienestar es una celebración del mes de conciencia para el Lupus, la Fibromialgia y la Salud Mental. Tendremos sesiones de capacitación para el empoderamiento, educación para la salud y bienestar para pacientes, cuidadores y seres queridos que enseñarán las habilidades necesarias para participar activamente en estrategias de afrontamiento saludables. Estas sesiones serán atractivas e interactivas en Inglés y Español.  

¡Más información e inscripciones próximamente!


EVENTO GRATIS!

Registrese

Special Announcement

Thank you to all sponsors, speakers, volunteers and all attendees for making the 3rd Annual Wellness Day amazing!


¡Gracias a todos los patrocinadores, oradores, voluntarios y todos los asistentes por hacer que el 3er Día Anual del Bienestar sea increíble!

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Virtual Live Symposium Lupus Series

    

We are starting off our Live Educational Symposium Series together with GSK on Wednesday March 15, 2023 at 4:00pm PST entitled What is Lupus? 

We will have an amazing panel discussion, featuring Tatiana Spiegler, MSN, RN, PHN, GSK Patient Engagement Liaison, Ayanna Dookie, Stand-Up Comedian, Lupus Advocate, Storyteller along with our founders & lupus\healthcare advocates Juana Mata & Estela Mata.

There is no registration required, simply tune in to Looms4Lupus Facebook, Twitter or YouTube page to learn about Lupus, listen to our amazing panel discussion, participate in live Q&A session. 


The Live Briefing will be streaming simultaneously via Facebook, Twitter and YouTube.

If you missed it, video coming soon!

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    Acompanenos el Martes 28 de Marzo de 2023 a las 4:00 p. m. PST para la serie de simposios educativos en vivo en Español junto con @GSK  titulada ¿Qué es el lupus? 

Tendremos un panel de discusión increíble, con la participación de Tatiana Spiegler, MSN, RN, PHN, Patient Engagement Liaison de GSK, Alma Torres, Maestra de Educación Especial, Madre y Paciente de Lupus junto con nuestras fundadoras @Juana Mata y @Estela Mata . 

No es necesario registrarse, simplemente sintonice la página de Facebook, Twitter y  YouTube de @Looms4Lupus  para aprender sobre Lupus, escuche la sesion informativa de nuestro increíble panel y participe en la sesión de preguntas y respuestas en vivo. #Lupus #Looms4Lupus #matasisters

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    You are invited to our Live Educational Symposium Series together with GSK  scheduled for Wednesday April 5, at 4:00pm PST entitled Communication is Key!!

We will have an amazing panel discussion, featuring Tatiana Spiegler, MSN, RN, PHN, GSK Patient Engagement Liaison, Mari Gonzalez, Lupus Patient, Creator of Lupus Spoons, Cucharas de Lupus & Lupus Spoons 2.0 along with healthcare advocates Juana Mata & Estela Mata. 

There is no registration required, simply tune in to @Looms4Lupus Facebook, Twitter or YouTube page to learn about Lupus, listen to our amazing panel discussion, participate in live Q&A session. 

#Lupus #Looms4Lupus #matasisters

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 Estás invitado a nuestra Serie Educacional

de simposios en vivo junto con @GSK programados para

Miércoles 26 de Abril, a las 4:00pm PST titulado

¡¡La Comunicación es clave!! Discutiremos la importancia de la comunicación con su equipo de atencion medica, su familia, cuidadores y amigos. 

Tendremos un panel de discusión increíble, con

Tatiana Spiegler, MSN, RN, PHN, GSK Patient Engagement Liaison, Iris B. Rojas LCSW, Paciente con lupus, junto a nuestras fundadoras Juana Mata y Estela Mata.

No necesita registrarse, simplemente sintonise a la pagina de Looms4Lupus  Facebook, Twitter o YouTube.

#lupus #comunicacion #Looms4Lupus

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Hispanic Heritage Month- Mes de la Herencia Hispana

    

Nos complace reconocer y celebrar el Mes Nacional de la Herencia Hispana.Acompañenos a celebrar a una Latina Excepcional por su sobresaliente servicio a la comunidad Latina.
Este Viernes 7 de Octubre a las 12:00pm PST en vivo via Facebook. Tendremos a nuestra invitada especial Gabby Trejo, Directora Ejecutiva de Sacramento ACT (Area Congregations Together) en donde los valores de su fe le ayudan a crear una comunidad en igualdad y justicia para todos.
#HispanicHeritageMonth #Looms4Lupus #MataAdvocacyandSupport #mesdelaherenciahispana2022


The Live Briefing will be streaming simultaneously via Facebook, Twitter and YouTube in Spanish. 

Find out more

  

Nos complace reconocer y celebrar el Mes Nacional de la Herencia Hispana. Acompañenos a celebrar a una Latina Excepcional por su sobresaliente servicio a la comunidad Latina.

Este Miercoles 28 de Septiembre a las 12:00pm PST en vivo via Facebook. Tendremos a nuestra invitada especial Blanca Garza Jacobs, Directora de Comunicaciones para California Chronic Care Coalition. Ademas de su nuevo rol fuera de camaras Garza tiene 27 años de experiencia en el periodismo y es una de las periodistas latinas que ha sido galardonada en múltiples ocasiones; entre ellos 8 Emmys.

#HispanicHeritageMonth #Looms4Lupus #MataAdvocacyandSupport 


The Live Briefing will be streaming simultaneously via Facebook, Twitter and YouTube in Spanish. 

Find out more

Briefing:Access to COVID Prevention for High Risk Patients

Join us for a Briefing on Access to Covid prevention for high-risk patients on Wednesday September 1

  

Join us for a Briefing on Access to Covid prevention for high-risk patients on Wednesday September 14, 2022, at 10:00am PST via @Looms4Lupus Facebook page. Immunocompromised patients and individuals who can’t receive vaccines need access to additional protection against Covid-19. Learn why and what you can do to ensure access to the approved antibody treatment designed to prevent COVID infection in these populations. 

We will be hearing from Liz Helms, President and CEO of California Chronic Care Coalition, James Seaboldt, PhD, Lead Medical Science Liaison, Infectious Diseases AstraZeneca, Dr. Sanjeet Dadwal, Chief Division of Infectious Disease, City of Hope National Medical Center, Monica Tang, M.D., UCSF Infectious Disease Expert and Estela Mata, Patient Advocate and President of Looms for Lupus. 

No Registration is needed. The Live Briefing will be streaming simultaneously via Facebook, Twitter and YouTube:  

May 21, 2022 -2nd Annual Wellness Day

2nd Annual Wellness Event in Honor of May awareness for Lupus, Fibromyalgia and Mental Health

 

In celebration of May Awareness for Lupus, Fibromyalgia and Mental Health we are organizing a full day event committed to health and wellness for patients, caregivers, and loved ones.

We will have Empowerment and Education breakout sessions that will teach skills needed to actively participate in healthy coping strategies. These sessions will be engaging and interactive in English and Spanish.

Register

2º Evento Anual de Bienestar en Honor a la concientización de Mayo sobre el Lupus, la Fibromialgia y

En honor de la concientización de  lupus, fibromialgia y la salud mental en el mes de Mayo, estamos organizando un evento de día completo comprometido con la salud y el bienestar de pacientes, cuidadores y seres queridos. Tendremos sesiones de empoderamiento y educación que enseñarán las habilidades necesarias para participar activamente en estrategias de afrontamiento saludables. Estas sesiones serán  interactivas en Ingles y Español.

Registrarse

Wellness Day Event 2022 Speakers

Senator Susan Rubio

Senator Susan Rubio

Congresswoman Grace F. Napolitano

Congresswoman Grace F. Napolitano

  

Senator Susan Rubio was elected to the California Legislature in 2018, representing Senate District 22. She is the first Latina Chair of the Senate Insurance Committee and is on the Senate leadership team. She is Committee Member of Energy, Utilities, Communications; Health; Transportation; Governmental Organization; and Joint Committee

  

Senator Susan Rubio was elected to the California Legislature in 2018, representing Senate District 22. She is the first Latina Chair of the Senate Insurance Committee and is on the Senate leadership team. She is Committee Member of Energy, Utilities, Communications; Health; Transportation; Governmental Organization; and Joint Committee on Rules.  She is co-chair of the Senate Wildfires and Climate Change Resiliency Group and a member of the Senate Housing Group, convened to develop legislation to address the housing shortage in California. In addition, Senator Rubio is the first Chair of the Select Committee on Domestic Violence. 

Learn more
Founder and Co-Chair of the Congressional Mental Health Caucus, she was active in securing mental he

Congresswoman Grace F. Napolitano

Congresswoman Grace F. Napolitano

Congresswoman Grace F. Napolitano

Founder and Co-Chair of the Congressional Mental Health Caucus, she was active in securing mental health parity in the Affordable Care Act, and she dedicates tremendous energy to promoting mental health legislation and working with key players to increase funding and access  to mental health services. 

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Samy Metyas, MD, MSc, FACP, FACR

Congresswoman Grace F. Napolitano

Samy Metyas, MD, MSc, FACP, FACR

Dr. Metyas is board certified in Internal Medicine and Rheumatology and has a Master’s Degree in orthopedic surgery. He has a private Rheumatology practice in Covina, CA. He is a Clinical Associate  Professor of Rheumatology at the University of Southern California (USC),  President of California Rheumatology Alliance (CRA).

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Dr. Monica Blied, PhD, MACL

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

Samy Metyas, MD, MSc, FACP, FACR

 Dr. Monica Blied is a California-based Clinical Psychologist, wife, mother of 3, Lupus warrior, and the founder of Faces of Health Wellness Center in Claremont, California.

Daniel G. Garza

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

Daniel G Garza is a 20-year, award-winning, HIV advocate dedicated to education and prevention. He's also an actor, stand-up comic, and host of, "Put It Together Conversations" and "The Christian & Daniel Show" with his partner, on his network Lilmesican Productions. He brings positive energy to those around him with his Reiki work and intuitive readings as "The Card Divo".  

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

Dr. Elisheva Irma Diaz, MTS, BAJS,DD

International Author, Public Speaker, Lecturer Author, Elisheva Irma Diaz, is a born and raised Angeleno.

Monica Blake, PCC

Armida Ayala, PhD, MHA

Monica Blake, PCC

Monica Blake is a Professional Certified Coach (PCC) with expertise in Executive, Career, and Life Coaching, a Business and Human Resources Consultant, a Certified Pilates Instructor, and a Motivational Speaker.

Learn more

Ana Alvarez, MSW

Armida Ayala, PhD, MHA

Monica Blake, PCC

Ana Alvarez is a Mental Wellness Coordinator at El Centro de Ayuda.  


Armida Ayala, PhD, MHA

Armida Ayala, PhD, MHA

Armida Ayala, PhD, MHA

Armida Ayala, PhD, MHA, is currently the director of the Human Research Subjects Protections office at Kaiser Permanente, Southern California.  She has a background in anthropology and more than 25 years of expertise in research with vulnerable groups and research ethics.  

Wellness Day Event 2022-Interactive Workshop Sessions

Grieving Process

Intro to Brainspotting for Spoonies

Grieving Process

Chair Pilates

Intro to Brainspotting for Spoonies

Grieving Process

Intro to Brainspotting for Spoonies

Intro to Brainspotting for Spoonies

Intro to Brainspotting for Spoonies

Self Care & Beauty Tips

Self Care & Beauty Tips

Intro to Brainspotting for Spoonies

Mat Pilates

Self Care & Beauty Tips

Tecnicas Para el Estres

Tecnicas Para el Estres

Self Care & Beauty Tips

Tecnicas Para el Estres

El Bienestar de Uno Mismo

Grit & Grace of Caregiving

Grit & Grace of Caregiving

Grit & Grace of Caregiving

Grit & Grace of Caregiving

Grit & Grace of Caregiving

Gut Health & Healthy Snacks

Grit & Grace of Caregiving

Gut Health & Healthy Snacks

Mental Health Awareness

Mental Health Awareness

Gut Health & Healthy Snacks

Wellness Day Event 2022 Presentations

Latest on Lupus & Fibromyalgia Presented by: Samy Metyas, MD, MSc, FACP, FACR

Our kitchen, our lab: Grass Roots Science and Health Presented by: Armida Ayala, PhD, MHA

Our kitchen, our lab: Grass Roots Science and Health Presented by: Armida Ayala, PhD, MHA

Our kitchen, our lab: Grass Roots Science and Health Presented by: Armida Ayala, PhD, MHA

Our kitchen, our lab: Grass Roots Science and Health Presented by: Armida Ayala, PhD, MHA

Our kitchen, our lab: Grass Roots Science and Health Presented by: Armida Ayala, PhD, MHA

Comedy Time with Daniel G. Garza

Us in Lupus Presented by Paula N. White, R.N., B.S.N., AE-C, CCE

Us in Lupus Presented by Paula N. White, R.N., B.S.N., AE-C, CCE

Us in Lupus Presented by Paula N. White, R.N., B.S.N., AE-C, CCE

Us in Lupus Presented by Paula N. White, R.N., B.S.N., AE-C, CCE

Us in Lupus Presented by Paula N. White, R.N., B.S.N., AE-C, CCE

2nd Annual Wellness Day -2022 Event Sponsor

2nd Annual Wellness Day 2022- Gold Sponsor

2nd Annual Wellness Day 2022- Silver Sponsor

2nd Annual Wellness Day 2022- Wellness Package Sponsor

2nd Annual Wellness Day 2022-Giveaway Sponsors

2nd Annual Wellness Day Agenda

Download PDF

Wellness Day Event 2022 Speakers- More to come!

Myrna Godfrey

Wanda Green, Patient Advocate, Author, Poet

Wanda Green, Patient Advocate, Author, Poet

Myrna Godfrey has helped change the lives of thousands of people around the globe. 

She has been on a personal journey of transformation and evolution for the past 20 years studying healing and mediation.


Learn more

Wanda Green, Patient Advocate, Author, Poet

Wanda Green, Patient Advocate, Author, Poet

Wanda Green, Patient Advocate, Author, Poet

Wanda Green is a healthcare advocate that is living on borrowed time. She's a patient and family caregiver for over 9 years so she is able to share personal perspectives in both spaces. 

Ruth Padilla-King, LCSW
Ruth Padilla-King is a Licensed Clinical Social Worker, and the intern train

Ruth Padilla-King, LCSW

Wanda Green, Patient Advocate, Author, Poet

Cassidy Carcamo, Beauty Advisor

Ruth Padilla-King is a Licensed Clinical Social Worker, and the intern training coordinator for Kaiser Permanente’s Educational Outreach Program in Baldwin Park.

Cassidy Carcamo, Beauty Advisor

Christy Jones, Certified Wholistic Health and Mindfulness Coach

Cassidy Carcamo, Beauty Advisor

  

Cassidy Carcamo is a beauty advisor and self-taught freelance make-up artist. She is enthusiastic about skincare and beauty products. 

Christy Jones, Certified Wholistic Health and Mindfulness Coach

Christy Jones, Certified Wholistic Health and Mindfulness Coach

Christy Jones, Certified Wholistic Health and Mindfulness Coach

  

Christy Jones an experienced Certified Wholistic Health and Mindfulness Coach. 

Learn more

Paula N. White, R.N., B.S.N., AE-C, CCE

Christy Jones, Certified Wholistic Health and Mindfulness Coach

Christy Jones, Certified Wholistic Health and Mindfulness Coach

Paula White is a Registered Nurse and Patient Engagement Liaison with GlaxoSmithKline Pharmaceuticals. 

Learn more

Looms for Lupus #ITattoo4MentalHealth Campaign- May 2022

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